Facts About CHD
Did you know?
❤️ CHD (Congenital heart disease) is the #1 birth defect.
❤️ Congenital means conditions present at birth. People may discover their condition as an adult, but if born with it, it’s considered a CHD.
❤️ 1 in 100 (or 1%) babies are born with a CHD.
❤️ 40,000 babies are born each year with CHD. Thousands will die before their 1st birthday.
❤️ CHD is more common than all forms of childhood cancer combined yet research funding is 10x less.
❤️ Every 15 minutes a baby is born with CHD in the US.
❤️ A baby's risk of CHD is increased by 3x if a parent or sibling has CHD
❤️ The most common CHD is Ventricular Septal Defects (VSD), the most common critical CHD is Tetralogy of Fallot (TOF).
❤️ 10% of all adult CHD patients didn't find out about their CHD until adulthood.
❤️ There is NO CURE. There are surgical repairs and transplants but they are not a cure, they only intend to increase length and quality of life. The heart will never be “normal” and will need to be monitored for life.
❤️ About 20% of CHDs are caused by a genetic syndrome.
❤️ The survival rate of critical CHDs is only 75% to age 1, 69% to age 18, and the survival rate to age 18 is over 85%.
❤️ Maternal diabetes is a recognized possible cause of CHDs.
❤️ The heart is fully formed between 4 and 8 weeks gestation, often before mom even knows she is pregnant. Only 1/3 of CHDS are caught before birth, on average around 20 weeks gestation.
❤️ About 1 in 4 babies (25%) born are considered critical defects, requiring surgery to survive the first year of life.